For its 40th anniversary, the En Coeur Foundation wants to create a space dedicated to the different experiences of families of children with a heart disease. We believe that sharing these stories has the power to comfort and connect people. This space is also designed to pay tribute to our little warriors, our amazing parents and our wonderful team.
It’s a place where everyone can tell their stories and read those of others.
We invite you to read, comment and share your own stories.
We’d love to hear from you.
Thank you so much for taking part!
Testimonials
Nancy and Claude, parents of Thomas
In 2010, at 22 weeks' gestation, we learned that our unborn son, Thomas, would be born with a congenital heart defect, hypoplastic right heart syndrome. At 9 days of age...
Laurence, Jolyane’s mom
Jolyane was born with a heart defect requiring two surgeries (one at 3 months and the second at 9 months). The En Cœur Foundation was there to...
Linda Poisson
I was referred to the pediatric cardiology department at the age of 10. My pediatrician heard a murmur. Following tests, Dr. Guay and Dr. Delisle told my parents...
Julie, Xavier’s mom
I'm little Xavier’s mom, who will soon be two years old. Before he was born, we knew that our little baby had a heart defect that would require one or more surgical interventions...
Nicole, Antoine’s mom
We had our first contact with the En Cœur Foundation the day after our son Antoine was born. At the time, we had no idea how important the En Cœur Foundation...
Jessica, Roman’s mom
Roman was born with a heart defect nicknamed L-TGV, along with several other minor problems that led to him undergoing 3 operations at the age of 3 and 4 months!...
