Sooner or later, the child comes into contact with others: playmates, teachers, hospital staff. All these stakeholders can contribute to modifying, for better or for worse, the behaviours that the child will have acquired in contact with their parents. They will definitely influence their entire future life, as well as their social integration. Environmental reactions go from one extreme to the other. At school, for example, the child is either asked to follow others in all physical activities although unable to do so, or the child is instead put aside. The child then risks being singled out.
We believe that we should be optimistic in such a case. First, when behavioural changes do occur, they are usually mild. In addition, early surgical cure of the defect allows the child to enjoy a normal life in most cases. However, there is still a lot of work to be done, especially in improving the support to be given to parents from the moment they learn of their child’s anomaly.
By providing information to parents, En Cœur helps them to take stock of the specific needs of their child. A well-informed parent will be able to deal with their fears constructively and rationally.