As an organization working to raise funding for the health and social services sector, we collect, use, and disclose information daily for the purpose of providing our services related to fundraising activities of various kinds, participation in events, and information shared on our platforms. Privacy is important to us. We comply with the highest ethical standards when handling all information, especially personal information.
This Privacy Policy is intended to help you understand our practices regarding the collection, use, disclosure, and retention of personal information. By providing us with personal information (through our website, by completing an event participation form or OTHER APPLICABLE DIGITAL TOOL, E.G. CRM, by email, in person, or by phone), you agree that such information will be processed in accordance with this Privacy Policy, and you authorize Fondation En Coeur, its third parties, and service providers to process your personal information for the purposes outlined below.
This Privacy Policy does not apply to third-party websites accessible through links on this website, and Fondation En Coeur is not responsible for such third-party websites. If you follow a link to a third-party website, that site will have its own privacy policies which you should review before submitting any personal information.
WHO ARE WE AND WHAT DO WE DO?
“To be a true support system for children with heart disease and their families.”
Did you know that in Quebec, 1 child out of 100 is born with a heart disease or congenital heart defect requiring medical follow-up?
This represents 900 new families facing this diagnosis every year.
Fondation En Cœur’s mission is therefore to help children with congenital heart disease and their families by providing information and support services. En Cœur also aims to raise public awareness about the importance of supporting children with heart disease and their parents.
In pursuit of its mission, Fondation En Cœur organizes several events and provides various publications (books and brochures) intended to facilitate families’ access to relevant and reassuring sources of information.
WHAT PERSONAL INFORMATION DO WE COLLECT?
We may collect and process different types of personal information in the course of our activities and service delivery, including:
- professional and/or personal contact information, such as first name, last name, address(es), email address(es), date of birth, and phone number(s);
- biographical information such as job title, employer name, professional and/or personal background, photos, and audio or video content;
- marketing and communication preference information, as well as related information such as:
- dietary preferences, comments, and survey responses;
- information related to donation history, participation in organizational events, billing, and financial information such as billing address, banking information, or payment data;
- service-related information, such as details regarding services we have provided to you;
- information regarding your professional background, networks, social involvement, professional affiliations, and family connections;
- recruitment-related information, such as résumés, education and employment history, professional affiliations, and other information relevant to potential recruitment by Fondation En Coeur;
- website usage and other technical information, such as details about visits to our websites, your interaction with our advertising and online content, or information collected through cookies and other tracking technologies;
- information provided to us by our clients or on their behalf, or generated in the course of our service delivery, which may, where relevant, include special categories of personal information (including racial or ethnic origin, political opinions, religious or philosophical beliefs, union membership, sexual orientation, etc.);
- information such as your community donation and investment policy, your contributions, beneficiary organizations and their designated purposes where applicable, recognition received, decision-making processes, and the people involved in the organization and that process;
- any other personal information provided. Please note that if you provide us with personal information about other individuals (such as your clients, directors, officers, shareholders, or beneficial owners), you must ensure that they have been duly informed that you are providing us with their information and that you have obtained their consent for such disclosure;
- where applicable, proof of consent given to us (date, time, method), in circumstances where such consent is required for the processing of personal information;
- any other information collected by Fondation En Cœur.
CHILDREN
We do not knowingly collect information from children or other persons under the age of 14. If you are under 14 years of age, please do not provide us with personal information without the express consent of a parent or guardian. If you are a parent or guardian and you are aware that your children have provided us with personal information, please contact us. If we learn that we have collected personal information from minors without verification of parental consent, we will take steps to delete such information from our servers.
HOW DO WE COLLECT YOUR PERSONAL INFORMATION?
We collect your personal information directly from you and during our interactions with you, including:
- when you register for events, training sessions, and newsletters;
- when registering for fundraising events;
- when you make a donation to our organization, regardless of the form of your donation;
- when you register as a volunteer for our organization;
- during the provision of services we offer to you;
- any other means of collecting personal information applicable to Fondation En Cœur.
We also collect publicly available information, including on public platforms and our website.
HOW DO WE USE PERSONAL INFORMATION?
We may use personal information in one or more of the ways described below, with your consent or, where applicable, on another legal basis. In each case, we indicate the reasons why we use your personal information:
- To provide our services and conduct our operations, including administering and delivering our services and fulfilling our obligations arising from any agreement between you and us.
- To facilitate the use of our websites, ensure that content is relevant, and ensure that website content is presented in the most effective manner for you and your device.
- For marketing and business development purposes — to provide details about new services, information about developments within our organization and sector, and invitations to seminars and events where an individual has chosen to receive such information.
- For research and development purposes (including security purposes) — to conduct analyses to better understand our clients’ service and marketing requirements, better understand our organization, and develop our services and offerings.
- For recruitment purposes — to allow us to process job applications and assess whether an individual meets the requirements of a position for which they may apply at Fondation En Cœur.
- To comply with our legal, regulatory, or risk management obligations.
- To prevent fraud and/or conduct other background checks that may be required at any time under applicable laws, regulations, and/or best practices (if false or inaccurate information is provided or if fraud is detected or suspected, information may be shared with fraud prevention agencies and may be recorded by us or such agencies). When processing special categories of personal information, we may also rely on important public interest grounds (prevention or detection of crime) or legal claims.
- To enforce our rights, comply with legal or regulatory disclosure obligations, or protect the rights of third parties.
- To ensure payment — to recover amounts owed to us and, where necessary, enforce such recovery through debt collection agencies or other legal means (including legal proceedings).
- To reorganize or modify our organization — if we undertake a reorganization (for example, through a merger, consolidation, or transfer of part of our mission), we may need to transfer some or all personal information to an applicable third party (or its advisors) as part of any due diligence or transfer process to the reorganized entity or third party for the same purposes outlined in this Privacy Policy or for analyzing any proposed reorganization. In such situations, we will take all reasonable measures to ensure the protection and security of personal information.
- Any other use of personal information by Fondation En Coeur.
WITH WHOM DO WE SHARE PERSONAL INFORMATION?
Fondation En Cœur is a duly incorporated non-profit organization recognized as a charitable organization. Therefore, the personal information we collect may be transferred to and processed by any entity within the Fondation En Coeur network. We may also share personal information with certain third parties, including:
- Volunteers and clients of Fondation En Coeur for the purposes of recruiting employees, volunteers, and soliciting financial or other contributions;
- Third-party service providers and/or partners, including those who provide donation solicitation services, database analysis, websites, application development, hosting, maintenance, and other services. These third parties may access or process personal information in connection with the services they provide to us. We limit the information shared with these service providers to only what is reasonably necessary for them to perform their duties, and contracts with these providers require them to maintain the confidentiality of such information;
- Government authorities and law enforcement agencies where required by applicable laws. More specifically, we may disclose personal information and other information where required by law, including tax laws, or where we believe in good faith that such disclosure is necessary to comply with applicable laws, in response to a court order, subpoena, government search warrant, or otherwise to cooperate with such authorities and agencies;
- A purchaser, successor, or assignee in connection with any merger, acquisition, debt financing, asset sale, or similar transaction, as well as in the event of insolvency, bankruptcy, or receivership involving the transfer of personal information as a business asset to one or more third parties;
- We will only use personal information for the primary and legitimate purposes for which it was collected, or for purposes compatible with those primary purposes.
The organization uses third-party services, such as Google and Facebook, to promote its content and offers.
When you visit our website, these third parties may use cookies, invisible pixels, or other similar technologies on your hard drive to collect or receive information about your browsing activity on the website and elsewhere on the Internet. These technologies make it possible to display relevant and targeted advertisements based on your interests. You may review and delete cookies if you wish. You therefore have full control over them. We recommend referring to your browser settings to make the appropriate changes.
If you would like third-party websites to store cookies on your hard drive in order to provide you with targeted advertising, you may enable this option.
For more information, we invite you to consult our Cookie Policy (cookies – see p. 10).
HOW LONG DO WE RETAIN PERSONAL INFORMATION?
We retain personal information only for the length of time necessary for the purposes outlined in this Privacy Policy and to comply with our legal and regulatory obligations.
To learn more about how long we retain personal information, please contact us using the contact information provided in the section “How to Contact Us.”
WHERE DO WE STORE PERSONAL INFORMATION AND TRANSFERS OUTSIDE QUEBEC?
n/a
HOW DO WE PROTECT PERSONAL INFORMATION?
We follow generally accepted industry standards to protect the information submitted to us, both during transmission and once we have received it. We maintain appropriate physical, technical, and administrative safeguards to protect personal information against accidental or unlawful destruction, accidental loss, alteration, unauthorized disclosure or access, misuse, or any other unlawful form of processing of personal information in our possession. We have implemented measures to ensure that only staff members who need access to your personal information, or whose duties reasonably require such access, are authorized to do so.
However, no method of transmission over the Internet or method of electronic storage is 100% secure. Therefore, we cannot guarantee the security of the information you transmit or provide to us, and you do so at your own risk. We also cannot guarantee that such information will not be accessed, obtained, disclosed, modified, or destroyed as a result of a breach of our physical, technical, or administrative safeguards. If you have reason to believe that your personal information has been compromised, please contact us using the information provided in the section “How to Contact Us.” In the event of a confidentiality incident involving your personal information, we undertake to notify you as soon as possible after becoming aware of the incident. We will take reasonable measures to reduce the risk of harm and prevent similar incidents from occurring again.
WHAT RIGHTS DOES A PERSON HAVE REGARDING THEIR PERSONAL INFORMATION?
Under certain circumstances and in accordance with applicable data protection laws, individuals have the following rights:
- Access: the right to request whether we process information and, if so, to request access to personal information. Subject to applicable law and, where applicable, payment of a fee, the individual may receive a copy of the personal information we hold and certain other information concerning them;
- Accuracy: we are required to take reasonable measures to ensure that the personal information in our possession is accurate, complete, not misleading, and up to date;
- Rectification: the right to request correction of any incomplete or inaccurate personal information we hold;
- De-indexing: the right to request that we cease disseminating personal information or de-index any hyperlink attached to their name that provides access to information if such dissemination causes harm or violates the law or a court order (right to erasure or the “right to be forgotten”);
- Anonymization: our organization may, instead of destroying personal information, anonymize it for use only for serious and legitimate purposes (e.g., retaining information required for potential tax audits);
- The right to be informed when subject to a decision based exclusively on automated processing;
- The right to be informed when identification, location, or profiling technologies are used and of the means available to activate these features.
Finally, it is also possible to file a complaint with a data protection authority, particularly in the country, province, or state in which you normally reside (in Quebec, the Commission d’accès à l’information), where we are located, or where an alleged violation of data protection laws has occurred.
To exercise any of these rights, please contact us as indicated in the section “How to Contact Us.”
HOW DO WE USE COOKIES AND SIMILAR TECHNOLOGIES?
To obtain detailed information regarding the cookies we use, please refer to our Cookie Policy below (“cookies”), which forms part of this Privacy Policy.
HOW TO CONTACT US?
To ask questions, submit comments or complaints regarding this Privacy Policy or personal information, exercise your rights, file a complaint, or obtain information about our policies and practices concerning service providers outside Canada, please contact our Privacy Officer by email at sseguin@en-coeur.org, by phone at (438) 521-5011, or by mail at the following address:
Fondation En Cœur
Attention: Sabrina Séguin
Privacy Officer
8585 Saint-Laurent Blvd.
Suite 310
Montreal, QC H2P 2M9
HOW DO WE UPDATE THIS PRIVACY POLICY?
We may modify the content of our websites and the way we use cookies without notice. Consequently, this Privacy Policy and our Cookie Policy may be amended from time to time in the future. We therefore encourage you to review them each time you visit the website in order to stay informed about how we process personal information.
This policy was last updated on September 14, 2023.
COOKIE POLICY
Consent
By using our website (en-cœur.org), you consent to the use of cookies in accordance with this Cookie Policy. You will have seen a notice to this effect during your first visit to this website; although it will generally not appear during subsequent visits, you may withdraw your consent at any time by following the instructions below.
Disabling Cookies
When the organization setting the cookie provides an automatic opt-out tool for that cookie or cookies, we indicate the name of the organization, the category of cookies it sets, and a link to its automatic opt-out tool. In all other cases, we identify the cookies themselves and their source as of the date of this Cookie Policy so that you can easily identify and disable them if you wish through your browser settings.
If you do not accept the use of these cookies, please disable them by following the instructions for your browser provided on the following website (All About Cookies) or by using an automatic opt-out tool where applicable. However, some services may not function properly if cookies are disabled.
After your initial visit to this website, we may change the cookies we use. This Cookie Policy will always allow you to know who places cookies, for what purpose, and how to disable them if you review it from time to time.
What types of cookies are used by Fondation En Coeur?
The categories of cookies used by Fondation En Coeur and its providers are described below.
Strictly Necessary Cookies
These cookies are essential to allow you to browse the website and access its features.
Without these cookies, the services you request (such as navigation from one page to another) cannot be provided.
Performance Cookies
We use analytics cookies to analyze how visitors use our websites and to monitor website performance. This allows us to provide a high-quality experience by customizing our offerings and quickly identifying and correcting any issues. For example, we may use performance cookies to track which pages are the most popular, determine which linking methods between pages are the most effective, and identify why certain pages generate error messages. We may also use these cookies to highlight articles or services on the site that may be relevant to you based on your use of the website. Neither we nor our providers associate information collected through these cookies with your personal information.
Website Functionality Cookies
We use cookies to provide you with certain functionality. For example, to remember choices you make (such as your username or language) or to recognize the platform from which you access the site and provide enhanced and more personalized features. These cookies are not used to track your browsing activity on other websites.
Targeting Cookies
Targeting cookies (or advertising cookies) collect information about your browsing habits and are used to better tailor advertising to you and your interests. They are used by third-party services such as Like or Share buttons. The AddThis cookies mentioned above are also examples of targeting cookies. These third parties provide these services in exchange for recognizing that you have visited our website.
When you use LinkedIn, Twitter, or other sharing buttons available, you are directed to a page controlled by these companies, which may place cookies (including targeting cookies), and you will be subject to the cookie policies of LinkedIn, Twitter, or another relevant website respectively.
Use of IP Addresses and Web Logs
We may also use your IP address and browser type to help diagnose problems with our server, administer our website, and improve the services we offer you. An IP address is a numeric code that identifies your computer on the Internet. Your IP address may also be used to collect broad demographic information.
We may perform IP address checks to determine the domain from which you originate (e.g., google.com) in order to gain a better understanding of our users’ demographics.
Information derived from these types of cookies and technologies is not combined with information from another source that concerns you and will not allow us to identify you personally.
Invisible Pixels in HTML Emails and Webinars
Our marketing emails contain a unique campaign-specific “invisible pixel” that informs us whether our emails are opened and, combined with other technologies, tracks clicks on links within the email. We may use this information for various purposes, including determining which emails are most interesting to you and asking users who do not open our emails whether they wish to continue receiving them. The pixel will be deleted when you delete the email. If you do not wish the pixel to be downloaded onto your device, you should avoid clicking on links we send you. This information may be linked to your personal identity.
This Cookie Policy Does Not Cover Third-Party Websites
Please note that this Cookie Policy does not apply to the privacy practices of third-party websites that may be linked to or accessible from this website, and we are not responsible for such practices.
Changes to the Cookie Policy
We may update this Cookie Policy and encourage you to review it from time to time to stay informed about how we use cookies.
The last update to this Cookie Policy was made on September 14, 2023.
Legal Notice
FOUNDATION EN CŒUR PRIVACY POLICY
This Privacy Policy (the “Policy”) is intended to inform you about our privacy practices. We want to explain the purposes for which we collect your data and information, how they are stored and used.
EN CŒUR takes all reasonable measures to ensure the integrity and security of information obtained from users through the Site and to prevent any unauthorized access or use of such information.
To this end, EN CŒUR regularly reviews its security measures. In addition, each employee, independent contractor, or administrator commits to respecting the confidential data of donors, employees, administrators, volunteers, and beneficiaries of the Foundation.
TRACKING TECHNOLOGIES
Our Site uses cookie technologies, web beacons, and other tracking technologies to establish anonymous statistics about site users. We believe that displaying personalized, interest-based advertising is more relevant than advertising unrelated to the individual. We may also receive and record information from your computer and browser, including your IP address, websites you visited, and searches you conducted on our site.
You may disable Google’s use of cookies by accessing the Ad Preferences Manager or other recognized methods.
USE AND RETENTION
Data collected through our Site and any other information otherwise submitted to EN CŒUR may be used to improve the content of our Site, for marketing research purposes, for statistical purposes, to improve our services, or to provide you with information of interest.
We use data only for the purposes for which it was collected. Your consent will be required for the use of your personal information for commercial prospecting purposes other than those mentioned above. You may object to any use of your data, request its removal, or request modifications.
EN CŒUR retains data for a reasonable period either to achieve the established objectives or in accordance with legal requirements. After this period, the data will be destroyed or anonymized.
CONTACT US
You may contact us by email at encoeur@en-coeur.org for any questions regarding this Policy or any request related to your data. We will make every effort to process your request promptly.