For its 40th anniversary, the En Coeur Foundation wants to create a space dedicated to the different experiences of families of children with a heart disease. We believe that sharing these stories has the power to comfort and connect people. This space is also designed to pay tribute to our little warriors, our amazing parents and our wonderful team.
It’s a place where everyone can tell their stories and read those of others.
We invite you to read, comment and share your own stories.
We’d love to hear from you.
Thank you so much for taking part!
Testimonials
Chloé, Aya’s mom
My daughter Aya underwent open-heart surgery when she was only 23 days old due to a congenital heart defect. She spent a full month in...
Valérie, Arnaud’s mom
Arnaud was born with an undetected heart defect. At only two months old, he suffered a heart attack at home… In that life-changing moment, En Cœur was there for us—with support, with someone to listen, with comfort.
Josée, Florent’s mom
Florent est né avec diverses malformations cardiaques, diagnostiquées pendant la grossesse. Il a subi une opération à cœur ouvert à l'âge de 5 jours, puis à 7 mois.
Théo Sawaya-Guérard
Hello, my name is Théo. I was born with a congenital heart defect. When I was five days old, I underwent surgery to correct a transposition of the great arteries...
Amélie, Romane’s Mom
During my pregnancy, we were told that Romane had Tetralogy of Fallot. She was supposed to have surgery right after birth, but she was too small, so...
Valérie, Jackson’s Mom
Jackson was born with what’s commonly called a heart murmur. Thankfully, a very attentive resident doctor picked up...
