For its 40th anniversary, the En Coeur Foundation wants to create a space dedicated to the different experiences of families of children with a heart disease. We believe that sharing these stories has the power to comfort and connect people. This space is also designed to pay tribute to our little warriors, our amazing parents and our wonderful team.
It’s a place where everyone can tell their stories and read those of others.
We invite you to read, comment and share your own stories.
We’d love to hear from you.
Thank you so much for taking part!
Testimonials
Valérie, Jackson’s Mom
Jackson was born with what’s commonly called a heart murmur. Thankfully, a very attentive resident doctor picked up...
Camylle, Ethan’s Mom
At 35 weeks pregnant, we found out Ethan had a severe narrowing of the aorta along with a large ventricular septal defect (VSD). At 37 weeks...
Benjamine, Louis’ Mom
Louis was born healthy and came home quickly, everything seemed fine at first. But his rapid breathing worried us, so we went to...
Johannie, Philippe’s mom
Philippe was born with Tetralogy of Fallot at Matane Hospital on April 7, 2014, at 5:19 p.m. This heart defect had gone undetected...
Thomas-Éli mother
This is my big boy Thomas-Éli, who had open-heart surgery at CHU Ste Justine last November. Thanks to the amazing work of the cardiology team...
Allison Lop
As you know, our life changed dramatically on July 22nd, 2017, a day that should have been one of the most beautiful of our lives: our gender reveal...