For its 40th anniversary, the En Coeur Foundation wants to create a space dedicated to the different experiences of families of children with a heart disease. We believe that sharing these stories has the power to comfort and connect people. This space is also designed to pay tribute to our little warriors, our amazing parents and our wonderful team.
It’s a place where everyone can tell their stories and read those of others.
We invite you to read, comment and share your own stories.
We’d love to hear from you.
Thank you so much for taking part!
Testimonials
Caroline & Louis-Pierre, parents of Théodore
Theodore was born with Tetralogy of Fallot in December 2021. A malformation that was never seen at the 20-week ultrasound.
Manoé Turcotte
Manoé was born with a rare congenital heart defect. We didn't know about his condition until he was born. Since we live in a remote area...
Geneviève Liboiron
I was 16 weeks pregnant when we found out that our baby had several heart defects. Strange to say, but...
Léa’s mother
Léa was born with a serious heart defect: ALCAPA (abnormal left coronary artery originating from the pulmonary artery). As soon as she was born, she ...
Marine, mother of Aina
My princess was born 8 and a half years ago with hypoplastic left ventricle. She already had four older brothers and one older sister, but ...