For its 40th anniversary, the En Coeur Foundation wants to create a space dedicated to the different experiences of families of children with a heart disease. We believe that sharing these stories has the power to comfort and connect people. This space is also designed to pay tribute to our little warriors, our amazing parents and our wonderful team.
It’s a place where everyone can tell their stories and read those of others.
We invite you to read, comment and share your own stories.
We’d love to hear from you.
Thank you so much for taking part!
Testimonials
Marilyne, Jacob’s mom
Jacob, who suffered from a simple TGV, underwent surgery at one week of age for a transposition of the large vessels. He suffered thrombosis in his leg and brain...
Patricia, Rafael’s mom
Rafael received a mechanical valve when he was 2 and a half years old after his mitral valve failed. Then, at 10 and a half years old, Rafael...
Joëlle, Ellie’s mom
Ellie was born with a cardiac conduction disorder which necessitated the fitting of a pacemaker at birth. The Foundation was there for us...
Justine Côté
Hello, my name is Justine Côté, and I'm a 25-year-old young adult. I was born with a heart defect; pulmonary stenosis with transposition of large vessels...
Valérie, Livia’s mom
Our princess was born with a severe congenital malformation, a single ventricle. Added to this pathology was a TGV, as well as...
Lorna, Alfred’s mom
Our son Alfred was born with several complex heart defects. Following his birth, he was transferred from CHEO to Sainte-Justine...
