For its 40th anniversary, the En Coeur Foundation wants to create a space dedicated to the different experiences of families of children with a heart disease. We believe that sharing these stories has the power to comfort and connect people. This space is also designed to pay tribute to our little warriors, our amazing parents and our wonderful team.
It’s a place where everyone can tell their stories and read those of others.
We invite you to read, comment and share your own stories.
We’d love to hear from you.
Thank you so much for taking part!
Testimonials
Denise Pepin, Founder of the En Cœur Foundation
When he was born, along with his twin brother, he was diagnosed with severe Tetralogy of Fallot. He underwent surgery at 4 months to allow him to wait..
Sandie, Jackon’s mom
We learned when Jackson was born that he had Tetralogy of Fallot. He underwent open-heart surgery when he was 5 months old. Jackson will soon be 5 and he has a leaky valve...
Maël and Jakob
At the age of 7, Maël had a cardiac arrest. At the age of 12, Jakob also had a cardiac arrest. We had to fit a defibrillator to each of them, a device that is only available in adult format...
